A few weeks ago I took Ian up for his annual check up with his neurologist. It's pretty routine but I did have a few concerns. One of them was the possibility of his current seizure med causing some behavior issues. He's been on Keppra for a few years now and it's been, by far, the best med at keeping his seizures at bay. He still has a few break through seizures but we usually get a good 6-9 months between them. Still, Keppra has been known to create some behavior issues. After talking with our Dr. we decided that Keppra probably wasn't the problem and she told us we need to see psychiatry. Psychiatry is nothing new to us but I had major, MAJOR issues with his psychiatrist. I felt like he did very little listening to me and I had anxiety every time I went. I explained this to the neurologist who recommended we visit with the behavioral unit at the hospital (primary children's). I was excited about this opportunity to have a someone have "fresh look" at his case. I called and talked the the Behavioral unit and he talked to the psychiatrist and she agreed to see us...after they talk with our previous psychiatrist. This stresses me out for several reasons. First of all, he always made me feel like a inferior person. I felt stupid when I talked to him. He made me feel like a bad mother that only wanted to drug my child. He said to me, and I kid you not, "your child has autism, what do you expect?" I hated his office but never dared find another doctor because I didn't want to hurt his feelings. Just when I feel like I've found a way out, he has to know about it. Oh well, at least it's not in the same building so I never have to risk running into him. I just really wanted a fresh start and someone to look at his case with new eyes and so I am worried about her talking with him about Ian's case. Hopefully she can remain objective and she can more compassionate than our last doctor. All I want is help for Ian and for our family. Is that too much to ask?
Tuesday, May 11, 2010
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1 people not afraid to say something:
Angi, I will be praying for you to get a good visit with a decent psychiatrist. When Chance was first diagnosed, they told us that we needed to meet with the school psychiatrist. I attended a parents meeting and this woman rudely told all of us that for the first 10 years after her daughter was diagnosed as being deaf, she and her husband never talked about it because it wasn't needed. Doesn't that sound healthy and normal? I spent the next year praying that we would never have to meet with this woman.
I will be praying that you get a good, normal, friendly psychiatrist who listens to you and really understands what you are saying.
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